Centrelink is a program in the Department of Human Services that delivers a range of payments and services for a wide range of people e.g. unemployed, families and people with disabilities. It also provides services at times of major change. At present, there are three types of payments available for people with a medical condition who are looking for work – the Newstart Allowance, Disability Support Pension and Sickness Allowance. Please note that Centrelink requires documented evidence for all medical conditions.
Crohn’s & Colitis Australia (formerly the Australian Crohn’s and Colitis Association) provides detailed information about inflammatory bowel disease (IBD) for those with this condition, teachers and healthcare professionals. The website provides advice on the management and treatment of Crohn’s disease and ulcerative colitis and the latest research in these areas. The website provides opportunities to connect and communicate with others facing a similar situation. Access to certain materials requires a subscription. The foundation also offers an IBD helpline.
The Crohn’s & Colitis Foundation of America (CCFA) website provides information on both Crohn’s disease and colitis. It also provides free educational webcasts on a variety of topics from disease management to diet and an e-newsletter for updates on disease research and fundraising events. A ‘disease tracker’ tool is also available to help persons with inflammatory bowel disease track their symptoms, monitor their overall wellbeing and stay on top of their treatment.
The Crohn’s and Colitis UK (the working name for the National Association for Colitis and Crohn’s Disease, NACC) website provides information, support and offers membership to those living with colitis and Crohn’s disease, their families and healthcare professionals. The website also encourages sharing of experiences.
The Dieticians Association of Australia website provides a listing of accredited practising dieticians, who have the qualifications and skills to assist people to manage a range of health conditions including inflammatory bowel disease. These dieticians can assess an individual’s nutritional needs and develop a personalised eating plan. Patients can search for a dietician by geographical location and also by language.
GI Monitor App
GI Monitor is available from the WellApps website (download for iPhones and Android phones or log on and use through the website). This is a symptom logging application or ‘app’ for patients with inflammatory bowel disease. Data such as meals, pain levels, medication and bowel movements can be entered by patients and collated into easy-to-read reports to be discussed with healthcare professionals.
The Get Healthy Service provides information and ongoing health coaching, helping participants improve their diet, become more active, and maintain a healthy body weight. Visitors will need to register to receive 10 free telephone-based health-coaching calls over 6 months from a university-qualified health professional. Please note that this service is only available to persons over 18 years of age living in New South Wales, Australian Capital Territory and Tasmania.
1300 806 258
Inflammatory Bowel Disease By Dr. Mike Evans
The inflammatory bowel disease and Crohn’s video by Dr Mike Evans and the Canadian Gastroenterology Society, highlights the difference between Crohn’s disease and ulcerative colitis, the symptoms, and the different ways to manage and treat the conditions. This resource is provided for general information and does not replace the advice given by your doctor or healthcare team.
The IBD Helpline is a free national telephone service offered by Crohn’s & Colitis Australia that provides support, information, counselling and referrals for people living with inflammatory bowel disease (IBD). The helpline provides access to an experienced volunteer counsellor for emotional support and coping strategies between 9am and 5pm (EST), Monday to Friday.
Please note that the IBD Helpline is not a 24/7 Crisis Line. If there is an emergency, please contact the nearest hospital or local GP.
1800 138 029
IBD Support Australia
IBD Support Australia provides resources for people living with inflammatory bowel disease (IBD). Information sheets on IBD and diagnosis are available for download along with a link to a Crohn’s Disease Activity Index (CDAI) calculator. Visitors have the opportunity to join an online community of people who have been affected by IBD and share their experiences.
Job Access Advisors
Job Access Advisors provides workplace adjustments and solutions for those with inflammatory bowel disease. It also gives information regarding an employment assistance fund, which can provide financial assistance for work-related modifications.
1800 464 800
Quitline is a telephone support and coaching service that can increase a person’s chances of quitting smoking. Callers can request a ‘Quit Pack’ to be sent to them free-of-charge. Quitline’s advisors can also offer advice on the range of quitting products available, how effective each product is, and practical advice on how to use these products.
Australian Council of Stoma Association
The Australian Council of Stoma Association (ACSA) website provides links to information for patients planning to undergo ostomy surgery and those who have undergone ostomy surgery. This website also provides useful information on travelling overseas following ostomy surgery.
A not for profit organisation dedicated to raising funds for research into IBD.
The Gut Foundation
The Gut Foundation website provides information on gut health, symptoms of gastrointestinal disease and methods employed by healthcare professionals to investigate disease. Visitors are able to ‘shop’ online for copies of pamphlets regarding dietary advice or a range of gastrointestinal diseases.
The J Pouch Group
The ‘J-Pouch’ operation (ileoanal anastomosis) is a surgical treatment option for people with chronic ulcerative colitis. The J Pouch Group website provides support to those who are planning to undergo, or have undergone, the J-Pouch operation. A series of 3D illustrations can help assist visitors in understanding the surgical procedure. Dietary guidelines available on the website can assist those with a ‘J-Pouch’ maintain their health and vitality following ileoanal surgery.
The national public toilet map
Many people with Crohn’s disease or ulcerative colitis stay at home during a disease flare due to the fear of not being able to access a public toilet. The National Public Toilets Map website allows visitors to browse for or search for public toilets across Australia. The ‘Trip Planner’ function allows visitors to identify toilet stops for a long car journey (for example, between Sydney and Melbourne). A National Public Toilet Map app is available for the iPhone.
1800 330 066
The Travel Clinics website offers a pre-travel ‘check list’, country-specific vaccination advice and fact sheets that can help you plan a holiday or business trip. The website also includes a directory of all Travel Clinics in Australia. Before you travel, make an appointment at your nearest Travel Clinic and discuss with a doctor how best to manage inflammatory bowel disease (IBD) while overseas.